Title

Lived Experience Advisors for UKCRIS (digital research database) Nottingham

Brief description

UKCRIS - Service users Documentation Review and redesign leading on to an advisory panel for research in mental health and intellectual delay and disability fields.

Main description

As part of our commitment to improve the health and wellbeing of our patients and service users, it is important to involve them in the development of the right information, presented in the most effective manner to inform people who might be thinking about becoming involved in research. We want you to share your knowledge and/or experience in reviewing, adapting and designing information for potential research projects and recruits.

We need to undertake this work quickly and would need to complete it by the end of September 2016. We are establishing a group of people to work with a range of medical professionals who will be reviewing and redesigning documentation to go out to potential research recruits telling them about the research projects, what will be expected of them as part of the project they are interested in, and how they might sign up to become involved. This work is expected to be completed in the early autumn of this year. Are you able to attend a workshop and a regular meeting once a week for approximately 4 weeks to help us finish this work? If you are not able to commit to this work but are interested in getting involved on a longer term basis we are hoping to set up an advisory panel. Some or all of the reviewing team could become involved in our advisory panel looking at research projects coming into the Trust and advising the Trust on whether they should sponsor the project or not. Maybe you would like to work on this. This group will be made up of medical professionals, academics and people who have lived experience and knowledge. All of whom will bring a different and important perspective to the work. Thiswill involve 4 to 8 meetings a year, for which support and guidance would be provided

To be advertised; from July 2016 until June 2017

Topic

Aging, Mental Health, Neurological problems and other

Location

All of England and East Midlands

Involvement Type

Review, design and managing

Can it be done from home?

No

Is it suitable for beginners?

Yes

Organisation Name

Nottinghamshire Healthcare NHS Foundation Trust

Description Organisation

An integratedNHS Foundation Trust providingcommunity healthcare, mental health services forolder people, working age adults and children and adolescents. The Trust also manages high, medium and low secure forensic mental healthservices and services for people who have intellectual disabilities.

Payment

To be agreed

Expenses

To cover travel and any other out of pocket expenses.

What support is being given?

Each workshop and meeting will involve the same group of people who will be supported both by the project manager and the service user representative in the first instance. We will have a well-established Involvement Team who will be available to offer advice and support. There will also be healthcare professional on the group so it is anticipated that the group and later panel will offer peer support.

Contact details

Oona Kirkland

Senior Project Manager

Health Informatics Service

Nottinghamshire Health Care NHS Foundation Trust

Porchester Road

Nottingham

NG3 6AA

0115 9691300 ext.15048

@nottshealthcare
facebook.com/nottinghamshirehealthcare