Knowsley Learning Disabilities Partnership Board

Health Sub Group

Notes of Health Sub Group Meeting

Held at

North Huyton Primary Care Resource Centre

On

1st December 2011- 11.30am – 1.30 pm

Present:

Johanna Lee (JL) / Clinical Lead Nurse: LD Team, Knowsley Integrated Provider Services (KIPS)
Barry Kelly / Operational Manager, Local Authority Adult Provider Services
Michelle Lawlor / Community LD Nurse, LD Team, KIPS
Christine Gibson / Community LD Nurse: LD Team, KIPS
Alison Joseph / Self advocate, Being Involved Group
Paul Jones / Locality manager Brothers of Charity
Lisa Woods / Self advocate: Being Involved Group
Michelle Ablewhite / Self advocate Being Involved Group
Joyce Duckworth / Manager KDC
Phil Dearden / Safeguarding; WhistonHospital
Cathy Rafferty / Equality & DiversityLeadAintreeHospital
Sue Kelly / SupportEquality & DiversityLeadAintreeHospital
Jane Burton / Nurse Practitioner Inpatient Unit Willis House

Apologies

Rachel Mayner / Health Facilitator/Community LD Nurse: LD Team, KIPS
Stuart Sheridan / Project Officer: Knowsley Integrated Commissioning Team
Lorna Pink / Service Manager / Speech & Language Therapist, Knowsley LD Intensive Support Team 5 Boroughs Partnership Trust
Katie Hardaker / Development Worker: Being Involved Group
Jill Lockett / Team Manager Community Partners Knowsley
Jan Peet / Service Manager: Local Authority Adult Provider Services/KMBC /PCT
Gill Beasley / Service Manager Alternative Futures
Tracy Henry / Lead Service Manager: Community Integrated Care Ltd (CIC)
  1. Introduction and apologies noted
  1. Notes of last meetingand actions reviewed

Updates;

2) Photo symbols package; still awaiting confirmation; Joyce agreed to explore with Stuart.

5) Consultancy group not yet established; a communication support worker has been recruited by KDC for 2 days per week, group will likely be set up in New Year.

  1. LD Health Self Assessment Framework (HSAF); Knowsley submission and SHA interview took place on 14th November. Awaiting feedback from SHA.

Phil and Cathy stated Whiston and Aintree hospital have both submitted their respective ‘Acute Trust HSAF’

  1. Access to LD Team; Johanna explained to the group that various services and agencies are requesting frequently information on how to access the LD Team / Integrated Disability Team; the information requested includes; referral process, what type of service is offered, timescales, follow up of treatment etc other members of the meeting stated they have been asked for similar information. Following discussion it was agreed it would be beneficial for a leaflet / information sheet to be available for services, people with learning disabilities, their families and carers.

Actions /
By
Who?
Johanna to discuss with Lorna regarding developing a team leaflet / information leaflet. An easy-read format would also be required / Johanna & Lorna

5. Postural Care; Jane Nurney Clinical Specialist Physiotherapist in KIPS has completed ‘postural care awareness sessions’. A report and recommendations will shortly be circulated.

6. Dysphagia pathway; due to Lorna being unable to attend the meeting this is deferred for next meeting

  1. Epilepsy; KnowsleyLD Nurse Team have identified a number of issues and concerns regarding the management of epilepsy for patients with learning disabilities. These concerns include patients not having / updated/ adhering to :
  2. Buccal midazolam rescue medication plans
  3. Epilepsy management plans
  4. Epilepsy seizure recording charts
  5. Health Action Plans
  6. Health Passports

Other concerns include;

  • Unnecessary admission to hospital A&E for management of status epilepticus
  • Non adherence to national and local guidelines and policies re epilepsy (NICE, ESNA, KIPS policies. GP QOF contract )
  • Capacity and competencies of LD Nurse team to continue to develop and deliver‘ ‘buccal midazolam rescue medication sessions’and ‘epilepsy awareness sessions’
  • Managers and staff in care provider services attending training and upkeep of training
  • Data of how many individuals have a LD and epilepsy

Following discussion by the group it was agreed tit would be essential to have a ‘working group’ to scope out what is required. This group will operate as a ‘task and finish’ group and initially will develop an action plan which would detail required work with agreed timescales. Johanna will lead the group, with support from Christine.

Phil stated he will make initial enquires to see if any data is collected in Whiston hospital.

Actions /
By
Who?
Johanna to circulate details to interested people to attend initial working group to scope out work required. / Johanna
  1. Any other business

Phil informed the meeting that Whiston Hospital have just hosted a ‘learning disabilities peer review event’ ; he felt this went very well with good input from Katie and the Being Involved Group, hospital therapists, pharmacists and A&E. It was noted by members of the meeting that Whiston are progressing well with raising the agenda on improving access for people with learning disabilities.

Whiston hospital have recently put ‘learning disabilities’ on their hospital internet / intranet website; the biggest ‘hits’ so far have been accessible information.

Phil asked if any families or carers require information on how to access a Health Passport or require support completing one where should he signpost them to. The consensus was to the LD Team; any member of the team can advise and support families and carers on how to complete them.

Actions /
By
Who?
Review, and promote the use of Whiston hospital website. Any recommendations to be made to Phil; / All members

Joyce asked members of the group if they thought that ‘Health’ should be a ‘standing’ item on the Partnership Board. Johanna explained in the past it was and all ‘sub groups’ had to do an update. This is now done via Debra Lawson’s LD & ASD strategy group.

Actions /
By
Who?
Consult with Debra Lawson if a quarterly and annual report should be completed by the Health Sub Group. For submission to the Partnership Board. / Johanna
  1. Date and time of next meeting.

Discussion took place regarding the frequency and location of future meetings. It was agreed to continue 3 monthly with working groups outside of this meeting. The group felt the same venue or one similar nearby is suitable.

Johanna agreed to explore availability of venues and send out meeting dates.

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