Terms of Reference

Hepatitis C: Collaboration Task & Finish group

Hepatitis C Treatment CollaborativeTask & Finish group: Forming a Commissioning Strategy for treatment for patients with Hepatitis C in England

Purpose

Hepatitis C: Collaboration Task & Finish group is established to advise NHS England on the commissioning of treatment for hepatitis C and provide context across all the issues related to hepatitis C. It will produce an “Examination of Issues”report relating to the treatment strategies of hepatitis C. For each issue identified it will define the strategy and mitigation and identify the body who will take lead on delivery. It will consider and make recommendations to support commissioning of treatment for chronic hepatitis C infection to maximize reduction in harm for patients within the available resource.

Role

  • To define the issues relating to hepatitis C identification, management and treatment and the differing patient populations affected;
  • To determine the strategic actions for each issue and define the responsible body to deliver; and
  • To consider the commissioning responsibility of NHS England, CCGs and Local authorities.

Context

  • To understand the drug pipeline and range of new treatment regimens;
  • To outline patient pathways leading into treatment and where these are sited; and
  • To outline the commissioning pathways involved in commissioning services for patients with hepatitis C

Demand

  • To understand the drivers for demand for treatment of hepatitis C
  • To understand the patient populations requiring treatment

Timing of Treatment

  • To understand the impact of timing oftreatment for the patient
  • To understand the impact of timing of treatment on the residual infection in the population

Patient Pathway

  • To understand the role of hepatitis networks
  • To understand the impact of new treatments on the current patient pathway
  • To understand the cost impact of new treatments on the cost of the current pathway

Other

  • As determined by the group

Analysis

  • To provide a summary of the sources and volume of demand
  • To model the impact on volume of different commissioning approaches to treatment and the timing of treatment
  • To model the impact on outcomes
  • To model the impact on reduction of harm/disease
  • To model the cost of different approaches and cost impact on the current pathway

Outputs

  • To have a shared understanding of the issues
  • To commission further analysis to support commissioning decisions
  • To develop a unified policy direction for the treatment of Hepatitis C that can be used across commissioning bodies and shared with key stakeholders

Membership:

Chair: Celia Ingham Clark, Director for Reducing Premature Mortality

NHS England, Specialised Services

Ursula Peaple, Programme Director, Internal Medicine(Interim)

Malcolm Qualie,Pharmacy Advisor

Michael Glynn, NCD Liver

Rosemarie Lindo,Internal Medicine Project Support Officer

Public Health Specialized,Jose Figueroa,

London Region Commissioning Team

Simon Williams

NHS England Health & Justice:

Kate Davies Commissioner

George Leahy Public Health Consultant

NHS England,Specialised Commissioning Clinical Reference Groups

Dr Peter Moss,Chair, Infectious Diseases

Dr Graham Foster,Deputy Chair, Hepatobiliary

Patient Representative

Charles Gore, Chief Executive of the Hepatitis C Trust

NHS England Specialised Commissioning Operations

Finance Peter Heywood, Commercial & Technical Delivery

Ethicist: requested

Provider representative from

Public Health England

Eamonn O’Moore, Director for Health & Justice

Dr Sema Mandal, Consultant Epidemiologist, Viral Hepatitis Lead

Dr Helen Harris, Clinical Scientist (Epidemiology) Research Associate

NICE Appraisals

Meindert Boysen, Associate Director

Elizabeth George)

Helen Knight ) Programme Team

)

Department of Health

Rowena Jecock, DH Blood Policy

Ben Cole, DH Policy

Office of CCGs

Peter Kohn, Director

Analytics Support

Loraine Hawkins/John Brittain, Information Health Economist

Local Government Association – requested but no response

Governance

The Hep C treatment T&F Group will report to NHS England Specialised Commissioning Taskforce

Meeting Arrangements

The Group will meet as required. Given the geographical distribution of members, meetings will be 2x face to face and 2 x webinar conference

25 November 2014