Learning Disability Health Check
Learning disability health assessment
O/E weight - on the accessible letter, we requested those people in a wheelchair
O/E height to bring their height and weight for everyone's convenience
Calculate BMI
O/E BP
O/E Pulse (rate/rhythm)
Urine Test for glucose
As you will note below the next request is for a TSH level, you may therefore consider
arranging a fasting blood test to test for glucose.
TSH level
Thyroid disease is more common in patients with Down's Syndrome. Annual TFTs
are recommended in patients with Down's Syndrome. If you are arranging this test
then consider adding in an FBC, as leukaemia is 10-30 times more common in
patients with Down's Syndrome. I tend to do and FBC, Profile &TFT for all LD pts.
Smoking status
Alcohol consumption
Diet advice
Exercise grading
Change in behaviour
Always consider ear and dental infections
Speech
Ask about any swallowing problems.
There is a useful assessment tool for primary care.
Ask them whether they have regular dental assessments.
Visual
Consider annual ophthalmic assessment in patients with Down's Syndrome and Sturge
Weber Syndrome, glaucoma is a particular problem with Sturge Weber.
Hearing
Consider annual hearing test for patients with patients with Down's Syndrome. The
Community Team for People with Learning Disabilities has very good links with our
local audiologists.
Mobility
Consider osteoporosis and the impact their particular syndrome may have.
Chiropody
Bowels assessment
Gastric cancer is more common in patients with Learning Disabilities. Also consider
the national bowel screening programme, and whether they have received a letter
that they understand, and can act on.
Bladder assessment
If incontinence is an issue, a continence assessment by the district nurses can be very
helpful, it is an important social and psychological issue that can improve quality of
life markedly, along with protecting against skin breakdown.
Epilepsy
Epilepsy is markedly more common in patients with Learning Disabilities, with some
estimates suggesting up to 60% of patients experiencing epileptic seizures. If the
patient has epilepsy, ensure they are on the QOF register, and consider whether they
are on medication such as valproate that would need blood level monitoring.
Mental health
Depression screening is valuable in patients with Learning Disabilities. Dementia is
much more common in patients with Down's Syndrome, and occurs earlier, however
clinical onset is still uncommon before 40 years of age.
Sexual health
Patients with Learning Disabilities may, like anyone else be sexually active, therefore
please do not shy away from this tricky subject. Patients may need contraception
and sexual health advice. A frank web-site that gives access to support in this area is
“Outsiders” and there is a particular link for Learning Disabilities. They are far
more vulnerable to sexual advances, and although the more significant the Learning
Disability, the less likely they are participate intentionally in sexual activity, the more
vulnerable they are to abuse. Safeguarding adults deals with all forms of abuse and
the local information is provided from the County Council – see here for the link.
Breast and testicular awareness
This is a contentious area. There are some that advocate an examination to assess
for abnormalities in all patients with a Learning Disability having. This is on the
reasonable principle that patients with a learning disability may not have capacity to
be adequately aware of what may be abnormal. They therefore should be offered a
breast or testicular examination. There are other people who believe this is an
invasion of privacy too far, and abnormalities should be picked up through the
existing screening programmes, and good education to the carers enabling them to
be aware and noting any visible abnormalities, then referring them to a doctor. I
would suggest you discuss this with the main carer for the patient. Fortunately the
web-site“EASY HEALTH” has videos of breastand testicularexaminations, that the
carer and patient could be guided to, then arranging an appointment with the GP.
Remember to check whether they due for a cervical smear.
Medication Review
As for QOF, every patient on regular medications needs their medication reviewed,
with patients with learning disabilities, particular issues will tend to relate to
epilepsy medication, sedatory and other psychotropic medications. It is notable that
many of the mediations have significant side-effects, and optimising the dosages may
reduce unwanted effects, such as over sedation or weight-gain.
Learning Disabilities Action Plan
Essentially, by the end of the health check there will be issues that need to be
actioned, whether they be for the patient/carer to arrange, or the clinician. Ask them
whether they have a health action plan. I have included a document that can be
either printed out, patient name written, along with actions, and then photocopied
and scanned, or more elegantly I include a document that will merge the patient's
details, that can then be typed into, printed for the patient and then saved into the
patient record. I recognise some training of your staff maybe required to use the
latter option.
Reproduced with agreement of Dr Tom Howesman