Office of the Superintendent
Name: ______
EMERGENCYACTION PLAN
HEMOPHILIA
Hemophilia is a genetic disorder of blood clotting caused by a deficiency of one of the clotting proteins, factor VIII (hemophilia A) or IX (hemophilia B). People with hemophilia experience bleeding into joints, muscles, and soft tissues as well as prolonged bleeding as a result of trauma or surgery. Bleeding episodes are prevented or treated with an intravenous infusion of the missing clotting factor. People with mild hemophilia A are sometimes treated with DDAVP (Stimate nasal spray). Prompt, early treatment of bleeding
episodes is best for prevention of complications of bleeding.
SYMPTOMS: The student says he is having a bleed, or the student sustains an injury or trauma. Symptoms of a bleed may include tingling or bubbling feeling in joint, limb held in abnormal position, discomfort or pain, area warm to touch, swelling, firmness or tenderness at the site of bleeding, restriction of range of motion. (The student may only have one of these symptoms.)
- Joints and muscles are most common bleeding sites.
- Any injury to or bleeding around the head and neck area is a medical emergency unless it is a nosebleed
- Trauma that occurs at school should be assessed. Parents should be notified so that they can implement a plan of care.
INTERVENTIONS:
- Note the location of pain or bleeding and notify parents or caregivers promptly.
2. Control external bleeding by applying pressure to the site for 10-15 minutes.
3. Elevate the site. Apply ice/cold pack.
4. Allow child to rest while waiting for parent.
5. Resume activity slowly after bleeding episode.
6. Do NOT give aspirin or medicine containing aspirin for pain relief.
7. If bleeding is uncontrolled, or in head or neck region (except nosebleeds),
contact parents regarding emergency care. Call 911 and transport to
______hospital as necessary.
8. Additional instructions: ______
______
Parent/Guardian Signature______Date______
Parent Phone Number(s) ______
Nurse Signature______Date______
Dates of verification/review (nurse signature)/CurrentSchool location:
______/______/______
______/______/______
______/______/______
This information will be shared with your child’s teacher unless you state otherwise
SCHOOL HEMOPHILIA RECORD
Name of Student______School______
Grade______Year______
Parent/Guradian______Phone______
______Phone______
Health Care Provider______Phone______
1. Does your child wear a “medic alert” bracelet? ____ Yes ____ No
2. What type of hemophilia does your child have? ______
______
- Is your child receiving medication (clotting factor) to prevent bleeding episodes on a regular schedule? ____ Yes ____ No
4. How often does he/she have bleeding episodes? ______
5. Does your child have a particular joint that bleeds frequently? ______
______
6. Describe symptoms when a bleeding episode occurs: ______
______
7. List activities in which your child should NOT fully participate: ______
______
8. Name medications taken routinely for pain relief or bleeding management: ______
______
- In the event of a bleed, what steps should school personnel take? ______
______
If medication is needed at school a Request for Medication Administration form must be completed and signed by parent and physician. Medication forms are available from the school office.
PLEASE READ THE EMERGENCY PLAN FOR HEMOPHILIA ON THE
REVERSE SIDE, AND ADD ANY FURTHER INSTRUCTIONS THAT YOU
WISH FOR YOUR CHILD.
June 2010