Activity Plan and Budget

2011 -2012

Contents

♥Aims and Objectives

♥Plans for 2011-2012

♥Organisation Structure

♥Activity Chart

♥Three Year Goals 2011-2014

♥Action Plans by month

♥Budget

Children’s Heart Federation(CHF) is the leading children's heart charity and the umbrella body for voluntary organisations in the UKworking to meet the needs of children and young people with congenital and acquired heart conditions (CHD) and their families.

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CHF provides direct emotional and practical support to children and young people living with CHD and their carers:

  • Our Information Service deals with over 5500 enquiries per year and we are currently completing the assessment for the health and social care Information Standard;
  • Through our social media network we facilitate peer-to-peer family support, bringing together parents who can advise and support each other in meeting the challenges of living with CHD;
  • We donate medical equipment, such as home testing kits for blood coagulation levels, to children/young people whose applications are endorsed by a relevant health professional;
  • We run a small grants programme to help families meet the additional costs of caring for a child with CHD (for example, a grant may cover the cost of parents travelling to visit their child undergoing heart surgery in a specialist centre many miles from home);
  • We run a programme for young people going through transition that is designed to help them become more independent, be more skilled and confident in making life-choices and take responsibility for their own healthcare.

We also act as the national voice of the CHD carer’s community, often working as the bridge between parents and policy makers and service providers. CHF is the only organisation that covers the full spectrum of CHD – other groups are either condition-specific or have a limited geographical focus.

CHF provides ongoing expert lay advice to several national NHS programmes which include:

  • Member of the Steering Group of theSafe & Sustainable Review of Children’s Congenital Cardiac Services co-ordinated by NHS Specialised Services;
  • Lay member of the NHS Newborn and Infant Physical Examination Programme (NIPE) overseen by the UK National Screening Committee;
  • Lay member of theExpert Advisory Committee forthe Somatom Definition Flash CT Scanner being reviewed within NICE’s Diagnostics Assessment Programme;
  • Member of the Project Board for the Congenital Cardiac Audit Database developed by the Information Centre for Health and Social Care

CHF is keen to promote and support research into the causes of and treatment for congenital heart disease and is a partner in a number of research programmes.

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Plans for 2011-2012

We plan to continue to provide high quality support directly to heart children and their families and to represent heart families on a national stage and ensure that their views are widely recognised, valued and respected.

Our Objectives are to be sustainable, well led, involve heart families and CHF members and stakeholders, expand our income generation activities and to increase our profile.

• Starting

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Charitable Activities

We will continue provide direct support by

♥Giving information and advice (telephone helpline, fact sheets, publications and website and making presentations at seminars and conferences);

♥Providing specialist medical equipment;

♥Giving out small grants to help families meet unexpected costs linked to the care of their heartchild;

♥Organising trips that bring families together for mutual support and respite from the daily strains of life with a heart condition.

♥Engaging with parents at CHF Roadshows

♥Expanding the Brighthearts Project, a programme of fun activities designed to engage and support young people living with heart conditions

And we will campaign for support and services by

♥Working in partnership with other organisations to develop policy and campaign on issues that affect families of children with a heart condition – both in this country and overseas.

♥Consulting regularly with families to understand their priorities for services;

♥Providing briefings on issues of interest to carers of a child with a heart problem;

Income Generation

Fundraising in the current financial climate is very challenging, particularly for medium sized charities with an income of under £1m per year. CHF has, traditionally, relied heavily on the corporate sector and has been very grateful for the generous support of our corporate partners and donors and we hope to strengthen our links with them,

Nevertheless, we recognise that we have to broaden our support base and so we plan to grow our network of individuals, groups and societies who support us through generous gifts, by organising fundraising events or taking part in fundraising activities which we will do through social networking.

We will also work with a commercial partner on developing Charity Check-Inn which will provide both economical accommodation for families of heart-children receiving treatment at a hospital some distance away from their home-town and executive accommodation which will provide additional income for CHF.

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Organisation Structure


Three Year Goals 2011-2014

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  • Establishsustainable revenue stream to maintain CHF’S activities supported by reserves equal to three months running costs (current value about £100,000) and the establishment of a professional in-house fundraising team.
  • Establish a development committee to secure support of high net-worth donors
  • Establish a network of local parent-led support groups and develop income stream from community fundraising
  • Develop and implement plans for CHF’s Silver Jubilee Year (Autumn 2012 – Summer 2013)
  • Develop the Family SupportService to include

Events

  • Two family events per year – one in summer, one in Christmas
  • Parent conference
  • Appointment of an events organiser

Grants

  • Have sufficient funds to re-instate family grant programme – (estimated at £36,000 p.a)
  • Have sufficient funds to provide new and replacement medical equipment as needed (estimated at £30,000 p.a)

Outreach Work

  • Wide recognition as the national organisation for congenital heart disease resulting a presence on the conference circuit

Communication

  • Develop the Brighthearts Programme to include
  • Three Brighthearts events – one in spring, one in summer, one in autumn
  • Publish a Brighthearts Web-Site and establish a social networking communication stream
  • Regular publication of a Brighthearts Newsletter
  • Appointment of a Youth Worker
  • Clarify the work of the Federationso that it meets the needs of its members with activities that might include
  • Shared projects with joint funding
  • Shared backroom services
  • Training
  • Annual Conference
  • Develop the Influencing Work so that it expands beyond the medical to include education and social service support
  • A firmly established network of parents interested in and involved in lobbying and influencing national health, social services and education policy and service provision
  • Ensure maintenance of Information Service
  • Recruit Information Officer dedicated to managing the service (to answer helpline queries, updateexisting and commission new fact-sheets, commissionnew publications)

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  • Grow CHF Facebook Community so that there are

10,000 members

Action Plan 2011-2012

September 2011 / October
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / ‘’About Us’’ leaflet
Plan Winter Wonderland Trip / Family Support / Plan Winter Wonderland Trip
Plan C’mas Party/Carol Singing Trafalgar Square
Brighthearts/YP project / Plan Performing Arts Workshop
Plan GUCH/Brighthearts Conference / Brighthearts/YP project / Plan Performing Arts Workshop
GUCH/Brighthearts Conference
Campaigns / Campaigns
Groups and Governance / Trustee Meeting
Service Review Meeting
ECHDO Board/Corience Meeting / Groups and Governance / Service Review Meeting
FR & FR Events / Winter Appeal - 5000 letters to companies
London/Brighton Bike Ride
CIBC Golf Day
Great North Run
Co appeal – donation to CHF in lieu of C’mas cards / FR Events
Other / Comms Plan
Donor Strategy Traing / Other
November / December
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / Plan C’mas Party/Carol Singing Trafalgar Square
Plan Winter Wonderland Trip / Family Support / C’mas Party/Carol Singing Trafalgar Square
Winter Wonderland Trip
Brighthearts/YP project / Plan Performing Arts Workshop / Brighthearts/YP project / Plan Performing Arts Workshop
Campaigns / Campaigns
Groups and Governance / Groups and Governance / Trustee Meeting
Service Review Meeting
FR Events / Big Give
Christmas Party
Santa Run / FR Events
Other / Other
January 2012 / February
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / Family Support
Brighthearts/YP project / Plan Performing Arts Workshop
Plan BH Trip to Portugal / Brighthearts/YP project / Performing Arts Workshop
Plan BH Trip to Portugal
Campaigns / Campaigns
Groups and Governance / Groups and Governance / Trustee Meeting
Service Review Meeting
FR Events / FR Events / Build a Bear
Other / Other
March / April
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / Family Support
Brighthearts/YP project / Brighthearts/YP project
Campaigns / Campaigns
Groups and Governance / AGM / Groups and Governance / Service Review Meeting
FR Events / Build a Bear / FR Events / Build a Bear
Other / Other
May / June
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / Family Support
Brighthearts/YP project / National Youth Ballet / Brighthearts/YP project
Campaigns / Campaigns
Groups and Governance / Groups and Governance / Trustee Meeting
Service Review Meeting
FR Events / FR Events
Other / Other
July / August
Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H / Core Activities/ Must do / Admin, Helpline,
Supervision Meetings/ Management Meetings
Staff Meetings
FR -15 major apps/20 small apps/
FR Vols -40 new apps
E-Mail News: HofF/H2H
Family Support / Family Support
Brighthearts/YP project / ScienceMuseum / Brighthearts/YP project / BH Trip to Spain (ECHDO organised)
Campaigns / Campaigns
Groups and Governance / Groups and Governance
FR Events / London 10k / FR Events
Other / Other

To add

  • Accommodation Programme
  • Safe & Sustainable consultation/Implementation
  • Roadshows
  • Promotion of ‘Think HEART’
  • Development of Research Partnerships

Budget

Income / 2011-2012 / 2010-2011
Actuals / Notes
£ / £
Grant (Trusts) / 125,000 / 147,641
Other income (includes DoH Grant) / 0 / 69,812
Donations and Gifts (Corporate) / 175,000 / 66,379
Donations (Individual gifts) / 75,000 / 0
Investment / 0 / 4,574
Trading / 0 / 0
Miscellaneous (other) / 27,000 / 46,702
402,000 / 335,109
Expenditure
Direct charitable expenditure / 15,000 / 11,799
Staff costs / 217,000 / 212,192
Premises costs / 30,000 / 28,445
Travel / 15,000 / 15,157
Office Costs / 45,000 / 43,954
Professional fees / 35,000 / 24,808
PR/Events (conference) / 10,000 / 9,276
Finance costs / 500 / 493
Trustee Costs / 4,000 / 3,718
Miscellaneous / 28,500 / 6,175
Depreciation / 2,000 / 1,933
402,000 / 357,950

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