Article Title: Patient Perspectives on Ipilimumab Across the Melanoma Treatment Trajectory
Article title: Patient perspectives on ipilimumab across the melanoma treatment trajectory
Journal name: Supportive Care in Cancer
Author list: Elyse M. Shuka, Alexander N. Shoushtari ab, Jason J. Lukec, Michael A. Postowab,
Maggie K. Callahanab, James J. Hardingab, Katherine G. Rothd, Marisa H. Flavine, Adrian Granoblesa, Jana O. M. Christianf, Geoffrey S. Goldg, Maria O. Schoenhammer h, Mallorie L. Gordon a, Nicholas D. Cimagliaa, Robert C. Dysoni, Noah M. Goodman-Davisa, Marta N. Colgana, Itisha S. Jefferson a, Rodrigo R. Munhoz j, Sandra P. D’Angeloab, Jedd D. Wolchokab, Paul B. Chapmanab, Ping Chiab, Richard D. Carvajal*k, Jennifer L. Hay*a
*Co-last authors
Affiliation list: aMemorial Sloan Kettering Cancer Center, New York, NY; bWeill Cornell Medical College, New York, NY; cUniversity of Chicago Comprehensive Cancer Center, Chicago, IL; dMather Hospital, Port Jefferson Station, NY; eSpaulding Rehabilitation Hospital, Charlestown, MA; fColumbia University College of Physicians and Surgeons, New York, NY; gHofstra University, Hempstead, NY; hThe Gordon F. Derner Institute of Advanced Psychological Studies, Adelphi University, Garden City, NY; iMount Sinai Beth Israel, New York, NY; jUniversidade de São Paulo, São Paulo, Brazil; kColumbia University Medical Center, New York, NY
Email address of corresponding author:
Online Resource 1. Qualitative interview guide, Week 0 sample cohort
Conceptual Category / Interview QuestionsAssessment of disease status / Tell us what you understand about where you stand with your cancer.
How is your cancer diagnosis affecting your life? Or the life of your friends/family?
How did you make the decision to be treated with ipilimumab?
What contributed to that decision?
Who helped you decide to get treated with ipilimumab?
Understanding of ipilimumab
treatment kinetics /
What is your understanding of how ipilimumab works?
How do you feel regarding the ipilimumab treatment timeline?
Tell us what you know about how long it will take you and your doctor to know if the treatment is helping you.
Understanding of ipilimumab benefit /
What do you know about the potential benefit of ipilimumab treatment?
How do you feel regarding the potential benefit of ipilimumab treatment?
How did you learn about the potential benefit of ipilimumab?
If you have received another therapy, how do you feel ipilimumab might be different in terms of benefit?
Understanding of ipilimumab
side effects /
What do you know about the side effects of ipilimumab treatment?
How do you feel regarding the side effects of ipilimumab treatment?
How did you learn about the potential side effects of ipilimumab?
If you have received another therapy, how do you feel ipilimumab might be different in terms of side effects?
Unique patient perspectives /
Is there anything else that you would like to share regarding your ipilimumab treatment?